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Spring 2010 Newsletter Released!
English French
Note that we are always looking for contributed articles for our newsletters. Please contact us if you have an idea!
Blog - The Widening Circle
I've started a blog about the transition years with Jessie called The Widening Circle. You can find it at www.dsbutterfly.blogspot.com Don't try to search for it, because it doesn't yet show up in any search engines no matter what words you use! But please come and visit it! We would love readers and followers!
The Widening Circle: Life with Jessie, Down Syndrome, Love, Laughter and a Little Bit of Light.
A day-by-day chronicle of life with my daughter Jessie (who has Down syndrome) as she transitions into adulthood and teaches me everything I need to know about life, love, passion, brokenness, and how to enjoy, really enjoy, a hot fudge sundae.
From the About This Blog section: We are in the transition years. Both Jessie (my daughter who has Down syndrome and is 20) and I (having hit the 50-year mark), which makes for a difficult time...mostly for Dan (father/husband)! I am questioning everything I ever did (or did not do) and I will not pretend to have any real insight or expertise in anything that has to do with Down syndrome or parenting or life! So this blog is a slice of our very imperfect and fraught with struggle and delight life. We do not really know where we are going, or even sometimes, where we are. So welcome to our life.
DSA-NCR Funding Assistance Program (french version below)
The DSA-NCR has allocated funds to provide members of DSA-NCR and their caretakers with funding assistance when funds are not readily available to them through government or community resources, and as well, to help build capacity within the DSA-NCR.
Please see funding criteria below, as well as links to the application and report forms.
Assistance in Support of Individuals and their Caretakers
- All Association members, including Board members, and persons in the NCR with Down syndrome shall be eligible to apply for funding assistance.
- All applicants named in the application shall be members in good standing of the DSA-NCR.
- All funds provided shall directly benefit an individual with Down syndrome.
- Preference may be given to those individuals who have actively participated on a volunteer basis in some capacity for DSA-NCR as well as individuals who attend the Annual General Meeting.
- Funding assistance may be provided to a maximum of $500.00 per applicant per calendar year.
- Successful applicants (or their caretakers) are strongly encouraged to submit a brief report (in writing or in person) to the DSA-NCR describing how the funds were spent.
- Funding assistance shall be provided on a first-come first-serve basis if all Program criteria are met.
Funding Assistance Application Form
Funding Assistance Report Form
Assistance in Support of Capacity Building
- For applications focused on capacity building within the DSA-NCR, the following criteria shall apply:
- All Association members, including Board members, and persons in the NCR with Down syndrome shall be eligible to apply for funding assistance.
- All applicants named in the application shall be members in good standing of the DSA-NCR.
- The application shall clearly describe how the proposed expenditure will help build capacity within the DSA-NCR, e.g. increased visibility, increased outreach to segments of the population not already well represented within the DSA-NCR.
- Preference may be given to those applicants who have actively participated on a volunteer basis in some capacity for DSA-NCR as well as individuals who attend the Annual General Meeting.
- Funding assistance may be provided to a maximum of $2,500.00 per applicant per calendar year.
- Successful applicants shall submit a written report to the DSA-NCR describing how the funds were spent and the impact on the capacity of the DSA-NCR.
- Funding assistance shall be provided on a first-come first-serve basis if all Program criteria are met.
Funding Assistance Application Form
Funding Assistance Report Form
ASD-RCN Programme d’aide financière
L’ASD-RCN a alloué des fonds à offrir aux membres de l’ASD-RCN et à leurs soignants une aide financière lorsque des fonds ne leur sont pas aisément accessibles par le biais du gouvernement ou des ressources communautaires, ainsi que pour aider au renforcement des capacités dans l’ASD-RCN.
Prière de consulter les critères de financement ci-dessous, ainsi que les liens pour les formulaires de demande et du rapport.
Aide en appui au(x) personne(s) trisomique(s) et de leurs soignants
- Tous les membres de l’Association, y compris les membres du conseil, et les personnes trisomiques de la RCN, sont éligibles de demander une aide financière.
- Tous les demandeurs nommés dans la demande doivent être membres en règle de l’ASD-RCN.
- Tous les fonds remis bénéficieront directement une personne trisomique.
- Nous privilégierons les personnes qui participent activement à titre de bénévoles dans quelque capacité pour l’ASD-RCN, ainsi que les personnes qui assistent à la Réunion générale annuelle.
- Le maximum de l’aide financière remise sera de 500 $ par demandeur, par année civile.
- Nous encourageons fortement les demandeurs (ou leurs soignants) choisis de soumettre un bref rapport (par écrit ou en personne) à l’ASD-RCN décrivant comment les fonds ont été dépensés.
- L’aide financière sera offerte sur une base de premier arrivé, premier servi, si on répond à tous les critères du programme.
Formulaire de demande d’aide financière
Formulaire du rapport d’aide financière
Assistance en appui au renforcement des capacités
Pour les demandes qui visent le renforcement des capacités dans l’ASD-RCN, les critères suivants seront appliquées :
- Tous les membres de l’Association, y compris les membres du conseil, et les personnes trisomiques de la RCN, sont éligibles de demander une aide financière.
- Tous les demandeurs nommés dans la demande doivent être membres en règle de l’ASD-RCN.
- La demande devra décrire clairement comment la dépense proposée aidera au renforcement des capacités dans l’ASD-RCN, par exemple, une visibilité accrue, une augmentation du faire-savoir aux segments de la population qui ne sont pas déjà représentés dans l’ASD-RCN.
- Nous privilégierons les personnes qui participent activement à titre de bénévoles dans quelque capacité pour l’ASD-RCN, ainsi que les personnes qui assistent à la Réunion générale annuelle.
- Le maximum de l’aide financière remise sera de 2 500 $ par demandeur, par année civile.
- Les demandeurs choisis devront soumettre un rapport écrit à l’ASD-RCN décrivant comment les fonds ont été dépensés et l’effet sur la capacité de l’ASD-RCN.
- L’aide financière sera offerte sur une base de premier arrivé, premier servi, si on répond à tous les critères du programme.
Formulaire de demande d’aide financière
Formulaire du rapport d’aide financière
DSAO Annual Conference - Niagara Falls 15-17 Oct 2010
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The Down Syndrome Association of Ontario is holding their Annual Conference in Niagara Falls 15-17 October 2010. See the flyer for details. |
2010 Buddy Walk - Saturday 2 Oct - Andrew Haydon Park (new location!)
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The 2010 Annual DSA-NCR BUDDY WALK will be held on Saturday October 2nd in a new location! The walk will be held in Andrew Haydon Park (Carling and Holly Acres Road). Everyone Welcome! |
New Membership Application - 2010
Here are the latest versions of the membership forms. Please mail them into the address provided to help us keep our information current, even if you have already paid your membership fees for this year.
English Version Version français
Adult Down Syndrome Medical Clinic
Notice: The Adult Down Syndrome Medical Clinic in now located at:
333 Preston St.
Suite 601
Ottawa, ON K1S 5N4
Telephone: 613-235-8079
Dr. Suzanne Rydzik sees individuals with Down syndrome over the age of 18 years.
* A referral is not necessary to schedule an appointment, although it is helpful.
Ontario makes Registered Disability Savings Plan (RDSP) fully exempt!
On Nov 30th, the Goverment of Ontario agreed to make RDSP assets and withdrawls fully exempt such that they do not affect a person's disability pension. This is great news for the disabled community.
See Ontario's press release here.
See a description of the RDSP here.
Lifetime Networks hosts workshops on the Registered Disability Savings Plan. See their RDSPAdvisor site for details.
Gloucester Association for Children with Special Needs (GACSN) Opening
The Gloucester Association for Children with Special Needs (GACSN) is a group dedicated to providing Special Needs children with a fun Saturday afternoon of swimming, crafts, and meeting friends.
The group meets each Saturday afternoon from 1:00 pm to 4:00 pm at the Orleans Recreation Centre. From 1:00 to 2:30 the group goes swimming and then return to Hall D for crafts, games and music. The group also goes on various outings (movies, bowling, museums, etc) throughout the year.
A full group is 20 children with various special needs ranging in age from 8 years old to 25 years old. The program is staffed with a mixture of program staff and volunteers from local high schools and colleges and runs from mid September to June.
We are happy to let you know we have an opening right now and would love to have you join us. For more info contact: hannahirving at gmail.com.
DSA-NCR Environmental Scan and Strategic Planning Project
The DSA-NCR, with the help of Deloitte, has recently conducted an Environmental Scan and Strategic Planning Project. This major endeavour involved the participation of several board members and volunteers, and included a survey of past and present DSA-NCR members. This project has resulted in the following documents:
Some of these files are very large (i.e. > 1M)
Genetic Screening and Information for Parents
 There is a growing debate over genetic screening for Down syndrome and the lack of information and councelling provided to parents who receive positive test results. See the following:
- An article about a recent Panel Discussion on Genetic Screening and the lack of information given to parents.
- The Campaign for Down syndrome blog has several commentaries and links to valuable information.
- Consider signing the online petition stating that "Canada needs a Prenatal Diagnosed Condition Awareness Act". There are nearly 750 signatures already.
Past Events & Announcements
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The information provided on this site is current as of the date it was posted. The content is provided for information purposes only and is in no way intended to be a substitute for consultation with a qualified professional regarding your specific needs. Although we carefully review our content, we cannot guarantee nor take responsibility for its accuracy. We cannot assume any risk, liability or obligations for reliance on our site content or reliance on the content of any site linked to our site. There may be mistakes in the information presented. As the website is only updated on a periodic basis, the site may not contain the most recent information. Information and available support is in a constant state of change. We reserve the right to update or change information at any time. We do not endorse any other site or organization.We endeavor to maintain a strict policy of neutrality in regard to those organizations we include. In consideration for your use of this site, you agree that in no event will we or any other party or person involved in creating, producing or delivering this website (including any and/or all of its contents) or any site linked to this website, be liable to you in any manner whatsoever for any decision made or action or non-action taken by you in reliance upon the information provided. Please send notice of any mistakes, other corrections, additions, suggestions, and/or information to info@dsancr.com.
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